The Children's Cardiomyopathy Foundation has a wealth of information on all types of Cardiomyopathy specific to children. Founded by Eddie Yu & Lisa Yue who lost both of their children to Cardiomyopathy, this site contains very detailed information on all areas of Cardiomyopathy from symptoms, diagnosis, treatment to prognosis etc. A must read for any parent with a child suffering from Cardiomyopathy.
HeartKids Australia website covering information on all areas of Heart Disease and Conditions in children including Cardiomyopathy.
Cardiomyopathy Association of Australia provides support by matching up families.
The New England Journal of Medicine 2003 article on the Epidemiology of Childhood Cardiomyopathy in Australia.
International Health Insurance Danmark, the McRae's Insurance provider which will cover a portion of the costs involved in the USA
The Heart Foundation Australia with information focusing on Heart Disease in Adults
The American Heart Association, the reciprocal organization in the USA
Centrelink's Carer Allowance which you may be entitled to if you have a child suffering from Cardiomyopathy, ask your doctor
The Children's Hospital Westmead, formerly the Royal Alexandra Hospital for Chidlren, in Sydney, where Zara has received most of her treatment so far
The Morgan Stanley Children's Hospital of New York Presbyterian Hospital where Zara will eventually get her heart transplant
Information on the drug Dilatrend Carvedilol, the beta-blocker drug that treats Heart Failure
Visit the website of Nick & Nate, identical twin boys in America who were both born with Dilated Cardiomyopathy, and are undergoing heart transplants, read their amazing story.
COTA, the Children's Organ Transplant Association, is a US charitable non-profit group who assist families with children requiring organ transplants to raise funds necessary to cover medical costs. The McRaes have applied for their assistance as Zara is a dual national citizen and eligible for their services. Hoepfully, with COTA's assistance, the McRaes can raise enough funds to cover her transplant costs in full.
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